piers_kolor  

 

甜蜜的咒詛 Our Curse

波蘭 Poland 2013 27 min Tomasz SLIWINSKI

 

2013 阿姆斯特丹國際紀錄片影展 International Documentary Film Festival Amsterdam

2014 英國雪菲爾紀錄片影展最佳學生影片與觀眾票選獎

Best Student Film and Audience Award, Sheffield Doc/Fest

 

 

小嬰兒里歐終於可以出院了,他患有「先天性中樞性通氣不足症」,會在睡夢中停止呼吸,終生需要安裝呼吸器。新生命的到來,除了帶給年輕小夫妻無盡的憂慮,也有數不清的愛與疼惜。導演即為里歐的父親,誠實記錄了做為罕病兒父母的悲喜交集的心路歷程。

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine's Curse. People affected with this disease stop breathing during sleep and require lifetime mechanical assistance on a ventilator. The film shows the first few months of living together after the diagnosis. The film examines the process of taming fear by and gradually adapting to new circumstances.

 

 

【放映場次】

 

9/27 六 18:20 華山一廳│ 10/1 三 20:00 華山一廳 10/5 日 15:30 華山一廳

 

 

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